future-perfect

 

T'internet

Is a place of gloom sometimes. I was looking for some info on pseudo, as one does, and started scrolling through google finding myself to drawn to words like "invariably", "fatal", "recurrence", "difficult to remove all traces". Thats quite depressing potentially and is it right? I found one thing that said the average age was 59 and that was all the commonalitiy they could find amongst cases. Everyone Ive spoken to on the forum is thirties and forties, but maybe the older generation dont go on forums? I think it can be ignored though. Even though it was in The Lancet it appeared to be written in 1969!

Back to now and what I understand.

Full cytoreduction has better outcome than debulking.

HIPEC is better to be had than not.

Full removal as far as can be seen is better than leaving residual traces.

Benign end of spectrum has better prognosis than malign end.

Add that to one individual who exercises, gets acupunctured on a regular basis, shiatsued on occasion, who monitors diet, drinks the horrible bud mix, the powdery mushrooms and the sludgy herbs.......doesnt that make a difference?

 

 

 

 

Archive for

September 2011

 

Mood

Caught myself feeling happy yesterday. Now Im worried!

Archive for

September 2011

 

Yin / Yang

Oh yeah baby...thats what Im talking about!

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To the casual observer this may look like Im planking. A new craze where people make like a plank in unusual places. This is Amits Pilates studio so nothing odd about that and anyway this isnt a plank.

So whats the big deal? Well this is my spine (and me) in tiny tiny tiny incremental degrees of extension. Just about perceptible and if I may say so, looking good.

Why is this significant? Its a bit like keeping lip balm in your pocket. Its always there when needed and in general its rather handy to have well lubricated joints and a full range of motion at your disposal. An extendable spine is a healthy spine. I could not do this after surgery and its taken 8 months to get it back. So its a milestone along the path of recovery I guess. A landmark moment. I can stand tall, I can lift my chest.....(oooh a bit of chest thrusting may be useful for my fundraising idea; but I digress. More of that later!) Its a physical gesture that flicks the V's at cancer and says "I am still winning".

Martha Graham instructed her dancers to lift their hearts to heaven. I can do that Martha, and more.  I can quite literally lift my heart away from cancer. Where the body goes the head will follow and a positive mind leads to a healthy body. A very good day indeed!

(Thanks for the pic Amit... lets do more!!)

Filed under: Cancer pseudomyxoma pmp pilates Pseudomixoma acupuncture future future perfect perfect pmp pseudomyxoma pseudomyxoma peritonei shiatsu
Archive for

September 2011

 

Now and Soon

I weigh 51.9kilos

I can run without stopping for 20 mins.

I can lift 2x 9K weights.

Things I am happy about: I will never have gallstones, I will never get appendicitis, I will probably never get fat, I will never have children (not happy about that but indifferent really.) I am happy that I live in the UK and happy that we have the NHS. I heard that in Brazil the MOAS is 35000 US dollars. I read Lionel Shriver's "So Much For That" and was even more relieved to have the NHS and  Brendan and his dream team.

I think the tax I have paid to date covered the costs of my surgery but I am pondering a fund raising mission within the next year. There are only two stipulations; my next scan needs to be clear and I will have to raise cash doing something out of my comfort zone. I have an idea brewing  though........

Tomorrow I go back to work! 8 months on and feeling good!

Filed under: Cancer pseudomyxoma pmp pilates acupuncture future perfect perfect pilates pmp pseudomyxoma pseudomyxoma peritonei shiatsu
Archive for

September 2011

11
To Posterous, Love Metalab